Find out about College expertise on the subject of participatory research and citizen science. Participatory research is the practice of public participation in research. Individuals or groups who are affected by the research topic are involved throughout the research process. This method emphasizes co-creation of knowledge, ensuring that the perspectives and needs of participants are integral to the research. Participatory Research and the Library The Library has more information on participatory research/citizen science, as well as resources for supporting best practice in participatory research at the University. Outwith: Participatory Research and the Library CMVM Public Engagement with Research Public engagement with research (PEwR) is a term used to describe the many ways that bring together the public and research. Public engagement can take place at any point in the research process: involving the public before the research begins to shape the research question, during the research process, or at the end to feed back on findings and work out how the findings of research can be applied.The CMVM Public Engagement with Research SharePoint has more information on how PEwR is used in CMVM. CMVM Public Engagement with Research SharePoint (requires UoE login) CMVM Patient and Public Involvement Patient and Public Involvement (PPI) refers to the collaboration between researchers and patients and the public. It ensures those impacted by the research have a say in the research process, which can lead to more relevant research questions and methodologies. Patient Public Involvement - Edinburgh Clinical Trials CMVM publications on the topic of citizen science Names in bold denote CMVM authors 2020- 2026Ana-Paula Rubio, Janette Dunn, Janice Borthwick, Sheila Saunders, Claire Tochel, Heather Anderson, Lorna Coull, Malihe Javidi, Heather Cloete, Alice McTrusty, Jonathan Penny, Tom MacGillivray, Andrew J. Tatham, Tracy Jackson, Carol Porteous, Niall Strang, Baljean Dhillon & Miguel O. Bernabeu: Beyond the dataset: integrating public voices in data science - comment article in Research Involvement and Engagement 2025Sue Fletcher-Watson, Holly Joseph, Laura Crane, Georgia Pavlopoulou, Steve Lukito, Eloise Funnell, Alyssa M. Alcorn & Catherine J. Crompton: Applied Principles for Inclusive Practice in Neurodevelopmental Research: A Selection and Report of Illustrative Case Studies - review article in Current Developmental Disorders ReportsJess Mitchell and others: Understanding the Potential of a Short-Term Participatory Video Project for Long-Term Change - article in Journal of Particpatory Research Methods2024Chase Ledin and Ese Johnson: Co-Production and Culturally Sensitive HIV Health Promotion - article in The PolyphonyHannah Milbourn, Daniel McCartney, Anne Richmond, Archie Campbell, Robin Flaig, Sarah Robertson, Chloe Fawns- Ritchie, Caroline Hayward, Riccardo E Marioni, Andrew M McIntosh, David J Porteous, Heather C Whalley and Cathie Sudlow: Generation Scotland: an update on Scotland’s longitudinal family health study - article in BMJ OpenGeneration Scotland – University webpage 2023Alastair Macrae, co-author with Rita Ribeiro and others: Linking human tick bite risk with tick abundance in the environment: a novel approach to quantify tick bite risk using orienteers in Scotland - article in Ticks and Tick-borne DiseasesNiamh MacSweeney, Perrine Louvet, Simal Zafar, Stella W. Y. Chan, Alex S. F. Kwong, Stephen M. Lawrie, Liana Romaniuk and Heather C. Whalley: Keeping up with the kids: the value of co-production in the study of irritability in youth depression and its underlying neural circuitry – Article in Frontiers in Behavioural NeuroscienceRuth McQuillan and Evropi Thedoratou, co-authors with Nadege Atkins and others: What are the characteristics of participatory surveillance systems for influenza-like-illness? – Article in Journal of Global Health2021Linda J Birkin, Eleftheria Vasileiou and Helen Stagg: Citizen science in the time of COVID-19 – editorial in ThoraxSonja Erikainen, Nicola Boydell, Nayha Sethi and Ellen Stewart: Participatory public engagement in digital health and care: Moving beyond conventional engagement methods - report published by NESTA2020Sonja Erikainen and Ellen Stewart: Credibility Contests: Media Debates on Do-It-Yourself Coronavirus Responses and the Role of Citizens in Health Crises – article in Frontiers in Sociology These pages are regularly updated as new publications on the topic of participatory research are published. If you are a CMVM author and would like your work on participatory research to be featured on this page, please get in touch at CMVMOpenAccess@ed.ac.uk This article was published on 2024-09-09
